We are so sorry for your loss.
Even if your child/family member is no longer with us, you are still part of this DSCNWA tribe! Your child was loved. Your child is missed. You were, are and will always be part of our tribe. You are a parent of a child with Down syndrome.
​
A member of our organization would like to attend any services that are planned for your child. Please let us know details.
Coping With Loss: Down Syndrome
A book by Nancy McCrea Iannone and Stephanie Hall Meredith- free download
"This book was created to help you in your darkest hour. It won’t take away your pain or loss, but we hope it will give you some information that may be otherwise difficult to find—information that can help you make decisions now that may later give you some comfort. This book will also give voice to new guides—parents who have experienced the same searing pain, who have committed to and embraced the journey of parenting a child with Down syndrome only to be unwillingly placed on a different path. We hope their words will resonate with you. You are not alone."
​
​
There are a few online support groups through DSDN. Reach out here to join
the private groups: support@dsdiagnosisnetwork.org
​
Organizations
For miscarriage, stillbirth, and loss of infants:
Empty Cradle: emptycradle.org
National Share: nationalshare.org
First Candle: firstcandle.org/grieving-families/
American Pregnancy: americanpregnancy.org/pregnancy-loss/
Project Sweet Peas: projectsweetpeas.com
Supportive Counseling: listeningreflectinghealing.com
​
For loss of children:
MISS Foundation: missfoundation.org
The Tears Foundation: thetearsfoundation.org
The Compassionate Friends: compassionatefriends.org/home.aspx
KinderMourn: kindermourn.org
Bereaved Parents of the USA: bereavedparentsusa.org
​
For general information about grief:
HelpGuide: helpguide.org
We are so very sorry for your tremendous loss!
​
Even if your child/family member is no longer with us, you are still part of this DSCNWA tribe! Your child was loved. Your child is missed. You were, are and will always be part of our tribe. You are a parent of a child with Down syndrome.